Your stories

Stories and features about babies born premature or sick, their families and the health professionals who care for them.

Browse through stories shared by families and health professionals, by using the search box below or scrolling down to see our most recent stories.

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Featured Story

My son’s hydrocephalus and cerebral palsy diagnosis – Sal’s story

Sal describes the challenges her son faces as a result of his condition but how his school has helped his progress.
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"I call NICU 'parenting boot-camp' and I don’t think I’d be the parent I am now without it" - Rosie's story

February 05, 2021

With George being a full term baby, Rosie did not expect him to end up in NICU. Here, Rosie tells her birth story, how she and her family dealt with…

"It is an experience that changes you" - Frankie's story

January 29, 2021

After being in NICU for 5 weeks after giving birth to Arlo, Frankie met Georgie, who also had a NICU baby. Together they set up an Instagram account…

"It felt like a never ending battle" - Charlotte's story

January 21, 2021

When Charlotte gave birth unexpectedly at 31 weeks, her daughter, Leela, was admitted to neonatal care. Read her story here.

"You just don’t know until you go through it" - Giorgia's story

January 15, 2021

Giorgia's son Arlo was born 11 weeks premature during the height of the pandemic. She explains how the parental restrictions and neonatal experience…

"I felt guilty that I couldn’t keep her safe inside me, where she belonged" - Amy's story

January 07, 2021

Betsie overcame so much during her first few months. She was an IVF baby, as her father had radiotherapy and chemotherapy for an incurable brain…

"I was petrified that I would give birth extremely early, with no one by my side" - Rachael's story

December 31, 2020

Rachael gave birth prematurely to her son, Joshua, during the COVID-19 pandemic. Here, she tells her story and how the difficult restrictions…

A Christmas to remember - Rachael's story

December 24, 2020

Rachael's baby wasn’t due until mid February, but having had her first child a month early two years previously, she knew that he might be born…

"I wasn't looking forward to Christmas Day if my boy wasn't coming home" - Lizzie's story

December 21, 2020

Having a premature baby seven weeks early leading up to Christmas was never a possibility I had considered. The fact that things didn't go to plan is…

Our baby woke up on her first Christmas Day without us - Karen's story

December 18, 2020

Just before Christmas, four years ago, I was seven months pregnant. My husband and I were looking forward to the holidays. It was due to be our last…

Our daughter's first Christmas was in NICU - Clare's story

December 11, 2020

Clare tells the story of her daughter Savannah's first Christmas, which was spent in NICU. They made the most of a difficult situation and her…

"I feel I should have enjoyed her early months, but simply couldn't" - Eleanor's story

December 03, 2020

Eleanor discusses how her daughter's difficult birth journey affected her mental health, and how she is coping now.

"It is essential that mothers find a community of lived experience" - Charlotte's story

November 27, 2020

Charlotte describes the importance of community after going through the neonatal journey, and how herself and her friend Vicky are helping other…

Taking a break from the NICU – Leah's story

November 19, 2020

Leah describes how spending so much time in NICU took a toll on her mental health and the steps she took to make herself and her family feel less…

Postnatal depression after the birth of my daughter - Sophie’s story

November 13, 2020

In February 2019, Sophie's daughter Erin was born at 26 weeks and 6 days, weighing only 620g. She describes Erin's experience with necrotising…

"I felt overwhelmed watching my little boy while trying to support my wife" - Tom's story

November 05, 2020

Tom describes the experience of his son Rafferty being born with a rare blood condition seven weeks before his due date, as well as the acts of…

‘I will always love you, little man’ – Danny’s story

October 12, 2020

Danny shares the story of losing one of his triplets to Necrotizing Enterocolitis (NEC)

Losing our two bears – Gary’s story

October 09, 2020

Gary looks back on the tragedy of losing his twin girls within four weeks of each other in 2003

"Arlo’s short life had taught me so many lessons" - Sarah's story

October 08, 2020

Following the loss of her son Arlo, Sarah is helping others who have faced baby loss with her book 'Arlo's Adventure'.