Involving parents in research

Bliss believes that having strong evidence to support treatments is important to ensure the best standard of care for premature and sick babies.

We want to make sure the experiences of families are listened to and learnt from. By working with families and researchers we want to ensure that research is looking at the things families feel are important, and that research is carried out in a family friendly way.

We actively encourage parents to be involved in research from the early design stages, through to the final stages of the project. We have created guidelines for research investigators when they are considering involving parents in their work.

I have been fortunate enough to work in partnership with parents in neonatal research for many years, and Bliss have been absolutely crucial in supporting this.

Dr Chris Gale, Consultant Neonatologist at Chelsea and Westminster Foundation Trust and lead researcher on the Cooling and Feeding and NeoEPOCH studies, supported by Bliss.

Further guidance on patient and public involvement in research can be found on the INVOLVE website

If you would like to know more about how Bliss helps to recruit parents to be involved in research, see our information on Bliss' approach to research.

If you are a parent who would like to be involved in research, please keep an eye on our social media pages where there are regular posts about research opportunities.