Your stories > “Families shouldn’t have to worry about finances while their baby is fighting to get well.” – Daisy’s story #FamiliesKeptApart

My daughter Melodie was born unexpectedly at 31+4 weeks after my pregnancy became complicated by severe fetal growth restriction and high cord pressure which meant she was struggling to get oxygen. 

I was only 19 so still very young and this was my first baby. Everything felt like it changed overnight. She was delivered by emergency caesarean section in North Wales and was taken straight to the neonatal unit after birth.

It was an incredibly frightening and overwhelming experience, especially as I hadn’t expected to meet my baby, weighing only 2lb 10oz, so early. The neonatal team became our lifeline for the next 8 weeks. 

Daisy 2

Although our neonatal journey was one of the most difficult experiences of our lives, it also showed us the incredible dedication of the staff who cared for Melodie.

Melodie was cared for by the multidisciplinary neonatal team throughout her stay. Having specialists involved meant she received expert care tailored to her needs. The dietitian supported and continues to support her nutrition and growth and the pharmacist ensured her medications were safe and appropriate. 

The multidisciplinary team worked together to give her the best possible start in life. Their knowledge and support also helped me feel more confident as a parent. 

The nurses and doctors were incredible people; they took extra time to explain things so that I understood. 

When Melodie was around one month old, I became extremely unwell and had to undergo emergency surgery. Because of the pain relief I was given, I had to discard my expressed breast milk, which was incredibly upsetting at an already overwhelming time. 

During this period, I was not well enough to be with her, and I was also not allowed back into the maternity area as too much time had passed. The NICU staff were absolutely incredible. They brought Melodie to me from across the hospital so I could see and hold her when I otherwise couldn’t reach her. That moment meant everything to me. 

I was only able to stay in overnight accommodation once because there was extremely limited availability for parents. Most of the time I had to travel back and forth every day, even though all I wanted was to be close to my baby. Having to leave the hospital each night while my newborn remained on the unit was heartbreaking. 

Daisy 3

Every parent should have the opportunity to stay with their baby throughout their neonatal journey.

The cost of unexpected expenses quickly added up. Families shouldn’t have to worry about finances while their baby is fighting to get well. A Neonatal Expenses Fund would have relieved some of that pressure and allow us to focus entirely on our daughter. 

Thankfully the ward provided food vouchers meaning we didn’t have to go home at dinner time and got to quickly get something to eat so we could spend more time with Melody.  

The Welsh Government should make sure every parent can stay with their baby throughout their neonatal stay without worrying about accommodation or financial barriers. Parents are an important part of their baby’s care, and no family should have to choose between being with their baby and being able to afford the journey. 

Thank you so much to Daisy for sharing her story. 

Read our Neonatal Services for the Future in Wales manifesto.