Your stories

Stories and features about babies born premature or sick, their families and the health professionals who care for them.

Browse through stories shared by families and health professionals, by using the search box below or scrolling down to see our most recent stories.

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Featured Story

My son’s hydrocephalus and cerebral palsy diagnosis – Sal’s story

Sal describes the challenges her son faces as a result of his condition but how his school has helped his progress.
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"I felt like I had failed her" - Shannon's story

May 05, 2021

Shannon's daughter, Senara, was born a week past her due date suffered a shoulder dystocia during birth. Here, Shannon discusses her NICU experience…

"I wish I had taken a break when I could" - Vanessa's story

April 29, 2021

I found out I was pregnant mid-May 2020, right in the heart of a pandemic, when my husband had just left for Afghanistan.

"It is devastating to see your little one covered in wires" - Beth's story

April 22, 2021

After a difficult pregnancy, Beth's son Kai was born full term, during lockdown. Sadly, Kai needed care in NICU. His stay in NICU was made even more…

"That moment I yearned for felt nothing like I thought it would" - Leah's story

April 06, 2021

After a smooth pregnancy, Leah gave birth at 42 weeks. No one expected her baby to need neonatal care, but her son Oscar was born with his umbilical…

"It could be the difference between being a rocket scientist or a brain surgeon" - Steph's story

April 06, 2021

Steph's daughter, Mia, was born full term and diagnosed with grade 2 HIE (Hypoxic Ischemic Encephalopathy). Here, Steph describes the birth and how…

"We had no idea if she would survive" - Hannah's story

March 30, 2021

When Hannah was about to give birth to her full term daughter, she did not expect for her to need care in NICU. Here, Hannah discusses the birth…

"Nothing is certain when you’re told your baby is going to arrive early" - Claire's story

March 24, 2021

Nothing is certain or reassuring when you’re told your baby is going to arrive early and will probably be in neonatal intensive care.

"I felt guilty that I couldn’t keep my baby safe until she was ready to be born" - Emma's story

March 23, 2021

After being diagnosed with HELLP Syndrome, Emma gave birth to her daughter at 31 weeks via emergency C-section. The traumatising experience left Emma…

"It broke my heart that my twins were separated" - Georgie's story

March 18, 2021

Georgie was not new to the neonatal experience, her first child was premature and needed care in SCBU. But when Georgie gave birth to full term…

I just remember sobbing all night, thinking "why me?" - Lorna's story

March 11, 2021

After a smooth pregnancy, Lorna's full term daughter unexpectedly needed to be resuscitated. Her daughter, Neive, was diagnosed with HIE and had to…

"Without a shadow of doubt, Harry is my 'miracle' son" - Emma's story

March 08, 2021

When Emma Flatman’s son Harry was born 11 weeks premature in March 2014, she had no idea if he would survive, but this “miracle baby” proved everyone…

"You feel like there is no light at the end of the tunnel" - Danielle's story

March 04, 2021

After giving birth at 31 weeks, COVID-19 restrictions sadly meant Danielle and her baby were separated for almost two weeks. Here, Danielle discusses…

"Everything that I had planned was taken away from me" - Kaitlin's story

February 26, 2021

After a pregnancy with no issues, when Kaitlin gave birth to her full term baby, he unexpectedly needed care in NICU. Her son, Lleyton suffered a…

"I felt useless, helpless and that it was all my fault" - Kerry's story

February 23, 2021

Kerry's daughter Evie was born full term and diagnosed with HIE, a type of newborn brain damage caused by a lack of oxygen and/or blood flow. Kerry…

Having a premature and full term baby in neonatal care – Bethany’s story

February 19, 2021

Bethany experienced neonatal care for the first time when son born prematurely in 2018, and again when her second son Teddy was born at term but…

"It was hard to understand how a full term baby could be so poorly" - Kim's story

February 19, 2021

Kim's baby was born full term at 41 weeks and two days. During birth her baby Blake suffered a brain injury causing her to need treatment in NICU.…

"I am in awe of my mum's strength" - Jo's generational story

February 18, 2021

This Mother's Day, Jo is reflecting on her mother's strength when she was born at 25 weeks in 1988, as well as celebrating her own pregnancy - she's…

"Each time I walked into NICU, I expected the worst" - Stacey's story

February 12, 2021