What parents told us through our mental health survey
Bliss ran a survey of parents who have had a baby or babies on a neonatal unit. We asked them about how the experience impacted their mental health.
From our survey, 96% of the respondents told us that they ‘strongly agree’ or ‘agree’ that their mental health was negatively affected by their baby/babies’ neonatal stay. This indicates that a large majority of parents on the neonatal unit will be suffering with their mental health, which reduces their ability to provide hands-on care for their baby, be involved in decision-making about their baby, or take part in ward rounds.
Pie chart showing what percentage of respondents felt that their mental health was negatively affected by their baby or babies neonatal stay. 96% responded 'agree', 2% responded 'disagree' and 2% responded 'neutral'.
Parents experienced the following:
Feeling tense, anxious or nervous
Feeling overwhelmed
Feeling panic or terror, despair or hopelessness
Having difficulty sleeping
Some told us that they felt unable to talk to people and had suicidal thoughts or feelings.
Only 39% of respondents to our survey of parents who have had a neonatal experience remembered being offered support with their mental health when they were on the neonatal unit. Of those, 60% went on to access the support.
Pie chart showing what percentage of respondents were offered support for their mental health by staff while they were on the unit. 50% responded 'no', 39% responded 'yes' and 11% responded 'not sure'.
Those that didn’t access the support gave reasons including:
Not feeling ready or able at that time
Not realising that they needed support
Being overwhelmed by what was happening
Not being able to focus on anything other than their baby/babies
Feeling nervous or embarrassed
I was in a daze, and didn’t think to do anything.
Parents told us that in addition to help from mental health professionals on the neonatal unit (where available) or from the care team working with their baby, they also found support by speaking with friends and family, faith leaders, charities, employee assistance programmes, other parents on the neonatal wards or private mental health professionals. 27% of respondents told us that they didn’t receive any support at all.
‘We put mental health too far down our list of priorities in neonatal care’ – Mel’s story
Mel's daughter Amaya was born premature and how Amaya's long-term complications impacted her own mental health.