Full list of useful organisations

Take a look at the full list of organisations that may be useful to parents and families of babies born premature or sick.

The links on this page lead to external websites, so we have no control over their content.


It can be worrying if you have been told you might have your baby early, or they might be sick when they are born. These organisations provide support during and after pregnancy.

Action on pre-eclampsia Support for those affected by pre-eclampsia

Antenatal results and choices (ARC) Information and support before, during and after antenatal screening

Ectopic Pregnancy Trust Information and support on ectopic pregnancies

Group B Strep Support Information and support on Group B Strep infection

Miscarriage association Information and support for those affected by miscarriage, ectopic pregnancy or molar pregnancy

Twins Trust Support for families with twins, triplets and more

Tommy's For information and support during pregnancy, and following miscarriage, stillbirth or premature birth

Family support

Family life on the neonatal unit and at home can feel challenging when your baby is born premature or sick. These organisations provide a range of support for families.

Carers Trust Information, advice, discussion and support for carers

Carers UK Support for carers and their families

Contact a Family Provides information and support to families with disabled children

CPotential Offers conductive education and a range of therapies for children with movement disorders such as cerebral palsy, acquired brain injury, or global development delay

Home-Start Help families with young children deal with the challenges they face

IPSEA (Independent Parent Special Education Advice) Free legally-based advice to families who have children with special educational needs

Gingerbread Information and support for single parents

NCT Information and support on pregnancy, birth and parenting

Netmums Bliss online forum A supportive online community for parents, families or carers of babies born premature or sick

Netmums Drop-In Clinic and Parent Supporter Service A dedicated space where parents can ask questions about different topics, such as feeding, mental health and sleep. Questions are answered by Netmums' team of parent supporters

Patients Association Information and advice on healthcare services, dealing with problems and handling complaints

Relate Offers advice and support on relationships

Samaritans Provides a confidential listening service

Twins Trust Support for families with twins, triplets and more

The Lullaby Trust Information and support on safer sleep for babies

Tiny Life Northern Ireland’s premature and vulnerable baby charity that provides a range of support services

Working Families Information on employment rights, childcare and flexible working

Financial support

A long stay in hospital or living away from home can cost a lot of money. These organisations can provide financial advice and information for families with a baby in a neonatal unit.

ACAS Provides free and impartial information and advice to employers and employees on all aspects or workplace relations and employment law, including specific guidance for parents with premature or sick babies

Citizens Advice Bureau Free, independent, confidential and impartial advice on issues including benefits, employment and debt

GOV.UK Information on government services including registering a birth, tax benefits, employment and tax credits

Family Fund Offers grants for families raising a disabled or seriously ill child

National Debtline Free, confidential and independent advice about debt problems

Turn2Us Helps people in financial hardship gain access to benefits, grants and support services

Practical support

It can be hard to know what practical support you need with a baby in neonatal care or when you go home. These organisations provide products and information to help you care for your baby.

Some of these organisations support the work of Bliss. Find out more

Angelcare Produces a range of sound and movement monitors as well as nappy disposal systems

Child Accident Prevention Trust (CAPT) Information on how to avoid injury and serious accidents involving children

Child Car Seats (RoSPA) Information and advice around suitable car seats for children

Mothercare Produces a range of baby products including premature clothing

Pampers Produces nappies, including for those born premature

Vija Design Produces a range of skin to skin clothing, with a specialist range for parents of babies born premature

Mental health support

Parents tell us how having a baby on the neonatal unit can impact their mental health. You may find help from these organisations

Best Beginnings Out of the Blue is a series of films, created by Best Beginnings, to help raise awareness of maternal mental health

Birth Trauma Association Offers support to all women who have had a traumatic birth experience and support to families also affected

British Association of Counselling and Psychotherapy (BACP) Provides a search to help you find a local counsellor or therapist

Mind Provides advice and support to empower anyone experiencing a mental health problem

Pandas Gives support to people coping with pre and postnatal mental illnesses

Samaritans Provides a confidential listening service

Young Minds A charity championing the wellbeing and mental health of young people

Conditions and disabilities

Neonatal units provide care for babies with a range of different needs. These organisations provide information and support for specific medical issues.

Asthma UK Information and support around asthma

Brain and Spine Foundation Information on injury or damage to the brain, spine or nerves

British Lung Foundation Support and information about lung conditions

British Heart Foundation Provides information about heart conditions