Support for medical conditions and disabilities

Baby in hospital bed wearing protective eye coverings with monitors attached to its chest.

These organisations provide information and support for people affected by specific medical conditions and disabilities.

The links on this page lead to external websites, so we have no control over their content.

Asthma + Lung UK provides support and information about lung conditions.

Brain and Spine Foundation provides information on injury or damage to the brain, spine or nerves.

British Heart Foundation provides information about heart conditions.

Cerebra Foundation provides support for children and young people with brain conditions.

Cleft Lip and Palate Association provides information and support services for those affected by cleft lip and palate.

Contact supports families looking for advice on any aspect of raising a seriously ill or disabled child from getting a diagnosis to what benefits you may be entitled to.

Genetic Alliance UK is an alliance of over 200 patient organisations, many of which are condition specific UK charities and support groups who exist to support children, families, individuals and carers.

National Deaf Children's Society provide information and support for children born deaf and their families.

NEC UK is a parent-led organisation offering support to families affected by NEC at any stage of their journey.

Peeps HIE provides support to parents, families & friends of those affected by hypoxic-ischaemic encephalopathy (HIE).

Rare Disease UK provides a united voice for the rare disease community.

The Royal Society for Blind Children supports blind and partially sighted children and young people, and their families.

Shine provides specialist advice and support for spina bifida and hydrocephalus across England, Wales and Northern Ireland.

Spina Bifida Hydrocephalus Scotland support and information to those affected by these conditions in Scotland.

The Stroke Association provides support and information about childhood strokes.

Swan UK - SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.