Conditions and disabilities
Neonatal units provide care for babies with a range of different needs. These organisations provide information and support for specific medical issues.
Asthma UK Information and support around asthma
Brain and Spine Foundation Information on injury or damage to the brain, spine or nerves
British Lung Foundation Support and information about lung conditions
British Heart Foundation Provides information about heart conditions
CDH UK Provides information and support on congenital diaphragmatic hernia
Cerebra Foundation Support for children and young people with brain conditions
Cleft Lip and Palate Association Information and support services for those affected by cleft lip and palate
Contact a Family Provides information and support to families with disabled children
Down’s Syndrome Association Information and support to help people with Down’s Syndrome, their families and carers.
Family Fund Offers grants for families raising a disabled or seriously ill child
Group B Strep Support Information and support on Group B Strep infection
National Autistic Society Provides information and support for autistic people (including those with Asperger syndrome) and their family
National Deaf Children’s Society Information and support for children born deaf and their families
Newlife Help and care for families of sick and disabled children, including specialist equipment services
RNIB Offers support and advice to anyone affected by sight loss
Scope Support for disabled people and their families
Steps Provides support for anyone affected by clubfoot, hip dysplasia and other childhood lower limb conditions
Whizz Kidz Offers a range of support and advice services for disabled children
WellChild Helps seriously ill children and young people out of hospital and home to their families
Health guidelines
Some organisations provide general guidelines for parents about caring for your baby. Take a look at these organisations and health programmes which you might find helpful.
NHS Choices General Offers general health information for a wide range of health conditions
NHS Pregnancy and Smoking Offers information on smoking in pregnancy and support for stopping smoking
PALS Information on how you can contact your Patient Advice and Liaison Service (PALs) for your hospital
The Breastfeeding Network Provides information and support to breastfeeding mothers
UNICEF UK Baby Friendly Initiative Leaflets Provide information to support breastfeeding mothers
UK Association for Milk Banks (UKAMB) Offers information on your nearest milk bank and also how to become a milk donor
