Asthma + Lung UK provides support and information about lung conditions.
Brain and Spine Foundation provides information on injury or damage to the brain, spine or nerves.
British Heart Foundation provides support and information about heart conditions.
CDH UK offers information, practical support, and a community network for families affected by congenital diaphragmatic hernia (CDH).
Cerebra provides advice and support for children and young people with brain conditions, and their families.
Cleft Lip and Palate Association (CLAPA) offers information, support, and services for people affected by cleft lip and palate.
Contact supports families raising a seriously ill or disabled child, with advice on diagnosis, care, and benefits.
Genetic Alliance UK brings together over 200 charities and support groups to improve the lives of people with genetic, rare, and undiagnosed conditions.
Group B Strep Support provides trusted information, raises awareness, and supports families affected by Group B Strep (GBS) infection.
Living with Reflux offers information, support, and advocacy for families affected by reflux and related digestive conditions in babies and children.
National Deaf Children's Society provides information and support for deaf children and young people, and their families.
NEC UK is a parent-led organisation offering support to families affected by necrotising enterocolitis (NEC).
Peeps HIE supports parents, families, and friends of babies affected by hypoxic-ischaemic encephalopathy (HIE).
The Royal Society for Blind Children supports blind and partially sighted children and young people, and their families.
Tiny Tickers works to improve early detection of serious heart conditions in babies and provides support to affected families.
TOFS provides information, support, and a community for people born with oesophageal atresia or tracheo-oesophageal fistula, and their families.
Shine offers specialist advice and support for people with spina bifida and hydrocephalus in England, Wales, and Northern Ireland.
Spina Bifida Hydrocephalus Scotland provides information and support for people affected by spina bifida and hydrocephalus in Scotland.
The Stroke Association provides support and information about childhood strokes.
Swan UK- (syndromes without a name) provides a support network for families of children and young people with undiagnosed genetic conditions. Run by Genetic Alliance UK.
WellChild supports seriously ill children and young people across the UK, helping them receive care at home and providing support to their families.
