Conditions, disabilities and health guidelines

Find out more about organisations which provide further information on conditions, disabilities and health guidelines.

The links on this page lead to external websites, so we have no control over their content.

Conditions and disabilities

Neonatal units provide care for babies with a range of different needs. These organisations provide information and support for specific medical issues.

Asthma UK Information and support around asthma

Brain and Spine Foundation Information on injury or damage to the brain, spine or nerves

British Lung Foundation Support and information about lung conditions

British Heart Foundation Provides information about heart conditions

CDH UK Provides information and support on congenital diaphragmatic hernia

Cerebra Foundation Support for children and young people with brain conditions

Cleft Lip and Palate Association Information and support services for those affected by cleft lip and palate

Contact a Family Provides information and support to families with disabled children

CPotential Offers conductive education and a range of therapies for children with movement disorders such as cerebral palsy, acquired brain injury, or global development delay

Down’s Syndrome Association Information and support to help people with Down’s Syndrome, their families and carers.

Family Fund Offers grants for families raising a disabled or seriously ill child

Group B Strep Support Information and support on Group B Strep infection

National Autistic Society Provides information and support for autistic people (including those with Asperger syndrome) and their family

National Deaf Children’s Society Information and support for children born deaf and their families

Newlife Help and care for families of sick and disabled children, including specialist equipment services

RNIB Offers support and advice to anyone affected by sight loss

Scope Support for disabled people and their families

Steps Provides support for anyone affected by clubfoot, hip dysplasia and other childhood lower limb conditions

Whizz Kidz Offers a range of support and advice services for disabled children

WellChild Helps seriously ill children and young people out of hospital and home to their families

Health guidelines

Some organisations provide general guidelines for parents about caring for your baby. Take a look at these organisations and health programmes which you might find helpful.

NHS Choices General Offers general health information for a wide range of health conditions

NHS Pregnancy and Smoking Offers information on smoking in pregnancy and support for stopping smoking

PALS Information on how you can contact your Patient Advice and Liaison Service (PALs) for your hospital

The Breastfeeding Network Provides information and support to breastfeeding mothers

UNICEF UK Baby Friendly Initiative Leaflets Provide information to support breastfeeding mothers

UK Association for Milk Banks (UKAMB) Offers information on your nearest milk bank and also how to become a milk donor