Insight and Involvement Group

The Insight and Involvement Group helps shape and improve our work. We want to make sure the experiences of families are listened to and learnt from.

What is the Insight and Involvement Group?

The journey through neonatal care is a unique experience that only people who go through it know what it's really like. This group is made up of ~300 people who have experienced neonatal care, whether they are parents or other relatives of premature or sick babies, or ex-neonatal patients themselves. They have all expressed an interest in shaping the research we support and supporting the work that we do.

What does the group do?

The Insight and Involvement Group are sent involvement opportunities such as:

  • Making sure patient information sheets are easy to understand for parents on the unit
  • Helping researchers to make their work parent or family-friendly
  • Help designing a research project
  • Reviewing research summaries to make sure the public can understand them
  • Helping the Bliss research team to decide on which projects to support
  • Help shaping the work of other Bliss teams
  • Overseeing a research project, for example attending research meetings
  • Helping researchers share their results with the public

Some members are also part of the Insight and Involvement Facebook Group where they share experiences, hear about neonatal news and can get involved in more opportunities.

How do I join?

Unfortunately sign ups are now closed for the Insight and Involvement Group.

Read our terms of reference for the group.

How do I contact the group?

If you are a healthcare professional or researcher who would like to contact the Insight and Involvement Group with an opportunity to help shape your work, please read our research support policy and complete our social media request form. Send to