Helpline 0808 801 0322


Useful organisations

There are a number of organisations that are able to help families who have a baby born premature or sick. Please click on the links below to find out more.

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Action on Pre-eclampsia (APEC) Information and support services. Helpline 020 8427 4217; Email

Air Liquide UK Suppliers of oxygen for healthcare purposes

Ameda Breastpumps and accessories

Angelcare Produces a range of sound and movement monitors as well as nappy disposal systems

Antenatal Results and Choices (ARC) Information and support during and after antenatal testing. Helpline 0845 077 2290 Email

Association for Postnatal Illness Offers information and support to mothers that may be struggling with postnatal depression. Helpline 020 7386 0868

Asthma UK Information and support around asthma. Helpline 0800 121 6244


BabyCentre Information and advice around pregnancy and parenting

Birth Trauma Association Offers support to all women who have had a traumatic birth experience

Bliss counselling service We have a network of Bliss trained counsellors in the UK who families can contact directly for support. Helpline 0808 801 0322

BOC Healthcare UK Supplies medical gases and related services

Brain and Spine Foundation Information on neurological disorders. Helpline 0808 808 1000

British Association of Counselling and Psychotherapy (BACP) Provides a search facility to help you find a local counsellor or therapist. t 01455 883 300

British Heart Foundation Helpline 0300 330 3311

British Insurance Brokers Association Insurance advice and products. t 0870 950 1790

British Lung Foundation Support, advice and a network of Breathe Easy support groups. Helpline 0300  0030 555


Carers Trust Information, advice, discussion and support for carers. t 0844 800 4361

Carers UK Support for carers and their families. Helpline 0808 808 7777

Cerebra Foundation for brain-injured children and young people. Helpline 0800 328 1159

Child Accident Prevention Trust (CAPT) The UK’s leading charity working to reduce the number of children and young people killed, disabled or seriously injured in accidents. t 020 7608 3828

Child Bereavement UK Leaflets, books and videos for the bereaved. t 01494 568 900; Helpline 0800 028 8840

Child Car Seats Information and advice around suitable car seats for children

Child Death Helpline Freephone service for anyone affected by the death of a child. Helpline 0800 282 986

Citizens Advice Bureau Free, independent, confidential and impartial advice on your rights and responsibilities

Cleft Lip and Palate Association Information and support services

Contact a Family Provides information and support to families with disabled children. Helpline 0808 808 3555

Cruse Bereavement Care Face-to-face support and practical advice for bereaved people. Helpline 0844 477 9400

Cry-sis Support for families with excessively crying, sleepless and demanding babies. Helpline 08451 228 669


Dad.Info A place where fathers can share ideas and find information

Department for Work and Pensions Responsible for welfare and pension policy within the UK

Down’s Heart Group Information and support relating to heart conditions associated with Down’s Syndrome. t 0300 102 1644

Down’s Syndrome Association Information and support to help people with Down’s syndrome, their families and carers. t 0333 1212 300


Family Fund Grants for disabled children. Also provide travel insurance for families. t 08449 744 099

Family Lives Offers help and support in all aspects of family life. Helpline 0808 800 2222

Fatherhood Institute Information on fatherhood and dad-friendly services. t 0845 634 1328


Gingerbread Information and support to lone parents through a network of local groups. Helpline 0808 802 0925

Group Strep B Support Information and support to families affected by group B Streptococcus. t 01444 416 176


Home-Start Support for families with young children. Helpline 0800 068 6368


IPSEA – Independent Parent Special Education Advice Free legally-based advice to families who have children with special educational needs. Advice line 0800 018 4016; Tribunal Helpline 0845 602 9579

IASS - Information, Advice & Support Services Network. Information and support for parents and carers of children and young people with special educational needs (SEN). Formerly the National Parent Partnership Network. t 020 7843 6058  


Kari Me Baby Slings Manufactures and supplies comfortable fabric baby slings.


La Leche League GB For friendly mother-to-mother support from pregnancy through to weaning. Helpline 0845 120 2918


Marriage Care Offers relationship counselling to couples and individuals face-to-face and by telephone. Helpline 0800 389 3801

Mothercare Produces a range of baby products including premature clothing. Available in-store and online

The Multiple Births Foundation For information on and support surrounding multiple births. t 020 3313 3519


NCT The UK’s largest charity for parents. Provides information and support, and introduces to local parent network. Helpline 0300 330 0700

National Deaf Children’s Society Provides information and support. Helpline 0808 800 8880

National Debtline Free, confidential and independent advice about debt problems. Helpline 0808 808 4000

National Parent Partnership Network - see IASS

Netmums Bliss messageboard - Connect with other parents who have had similar experiences.

Newlife Help and care for sick and disabled babies, children and their families. t 01543 462 777; Nurse services 0800 902 0095

NHS Pregnancy Smoking Helpline t 0300 123 1044


Pampers Produces specialist micro and premature nappies. t 0800 328 3281

Parentline Plus (Family Lives) Offers support to anyone parenting a child. t 0808 800 2222

Patients Association Campaigns to improve healthcare services and provides advice on dealing with problems or complaints. Helpline 0845 608 4455


RAC Information around driving with children in the car and suitable car seats.

React Financial support towards equipment for children with life-limiting illnesses. 

Relate Offers advice, relationship counselling, and support face-to-face, by phone and online. Helpline 0300 100 1234

RNIB Offers support and advice to blind and partially-sighted people in the UK. Helpline 0303 123 9999

RoSPA – The Royal Society for the Prevention of Accidents Information about road and child safety. t 0121 248 2000


Samaritans Confidential counselling service. t 0845 790 9090

Sands Supporting those affected by the death of a baby. Helpline 020 7436 5881

Scope Support for disabled people and their families. Helpline 0808 800 3333

Steps Provides support for anyone affected by clubfoot, hip dysplasia and other lower limb deficiencies. t 01925 750 271


Tamba (Twins and Multiple Births Association) Providing support for families with twins, triplets and more. Helpline 0800 138 0509

Tax Credits Helpline Provides advice to families on tax credits. t 0345 300 3900

The Breastfeeding Network Information and support for breastfeeding women and those involved in their care. Helpline 0300 100 0212

The Compassionate Friends Supports bereaved parents and their families. Helpline 0845 123 2304

The Lullaby Trust Supports bereaved families and provides advice on safer baby sleep. Advice 0808 802 6869; Helpline 0808 802 6868

Tiny Life Northern Ireland’s premature and vulnerable baby charity. t 028 9081 5050

Together for Short Lives Information and support around children’s palliative care. Parent helpline 0808 808 8100

Turn2Us Information about accessing benefits and grants. 0808 802 2000


UK Association for Milk Banks (UKAMB) Offers information on your nearest milk bank and also how to become a milk donor. t 020 8383 3559; e

UNICEF UK Baby Friendly Initiative Leaflets, information and research about breastfeeding.


Whizz Kidz Offers a range of support and advice services for disabled children. t 020 7233 6600

Working Families Information on employment rights, childcare and flexible working. t 0300 012 0312

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