Sadly, the majority of childhood deaths occur in the first few weeks and months of life - most commonly in a hospital neonatal unit.
However new research by Bliss, the UK charity for premature and sick babies, and Sands, the stillbirth and neonatal death charity, has shown that bereavement care for parents whose babies die in this period is worryingly inconsistent and under-resourced.
The joint Audit of Bereavement Care Provision in UK Neonatal Units (2018) reveals that most services lack sufficient specialist staffing input and appropriate facilities to support grieving families. The new research by Bliss and Sands found:
- Wide variation in the quality of bereavement rooms with more than 40% of the units having rooms situated where parents can hear other babies’ cries, which can be incredibly distressing.
- Bereavement care training is not available to staff in one in five units.
- Over a quarter of units provide no emotional support for neonatal nurses, and over a third have nothing similar in place for doctors.
- Although the majority of neonatal units (83%) reported having a bereavement care lead, only one in ten said that they had any dedicated time set aside to perform this role on the neonatal unit (and two thirds of these staff had less than eight hours a week).