The National Neonatal Audit Programme needs your help!

A parent holding their baby's hand while they lie in a bed

The Royal College of Paediatrics and Child Health (RCPCH) would like you to join a focus group on Tuesday 8th November, to understand your views on sharing information about yours and your child's neonatal experiences.

What is this?

The National Neonatal Audit Programme (NNAP), run by the Royal College of Paediatrics and Child Health, looks at whether babies admitted to neonatal units in England, Scotland and Wales receive consistent high-quality care.

They identify areas for improvement relating to the delivery and outcomes of neonatal care. By doing this, they support professionals, families and service commissioners to improve care for babies.

The national data opt-out is a service that allows patients in England to opt out of their confidential patient information being used for research and planning. You can find out more at:

They would like to understand whether you, as parents and carers of babies in our cohort, or former neonatal patients, would accept and support their application for an exemption, so they would like to invite you to a focus group so they can hear from you.

Who are they looking for?

Parents and carers who have experienced neonatal care through their baby’s admission to a neonatal unit in England, or adult former neonatal patients. You don’t need to have any particular experience – it doesn’t matter what type of unit you or your baby was admitted to, how long for or how recently.

What would they like from you?

They need an hour of your time to participate in a focus group that will be co-run between Bliss and the NNAP, on Microsoft Teams on Tuesday 8th November from 13:00-14:00.

They will circulate some resources ahead of the session and it would be helpful you were able to read those before you start.

To thank you for your time attending the session, they will send you a £20 Amazon gift card.

How can you sign up?

If you would like to take part, please contact Rachel Winch at the NNAP by emailing with the subject 'Data focus group'.