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Campaigner case studies

Our campaigners are motivated to improve the care babies receive when they are in neonatal care, and to increase the support available to parents and wider families. As well as helping us secure national changes, many of our campaigners work tirelessly in their local area, building a relationship with their MP and NHS Trust, to tackle issues that affect them the most. Below are some of their inspiring stories.


''I started campaigning for Bliss after watching a documentary discussing premature babies born at 23 weeks, the depressing conclusion of which was that perhaps it isn't always worth it. As a 23-weeker myself, now feeling lucky to exist, I wanted to help however possible.

"During my time campaigning, I’ve attended lobbying events in the Houses of Parliament and liaised with my local NHS Trust on nursing cuts, derogation plans and local issues surrounding transport and transferring of babies. Most recently I organised a visit to my local unit with my MP, Esther McVey, who is also a minister. This is my major success so far; campaigning is all about forging a solid working relationship with your local MP!

"To anyone thinking of campaigning, I would say 'go for it!' It's not always easy, but it is great fun, you meet inspiring people and you really can make a difference.''


''I campaign for Bliss because it means I can use my experience of having premature twins to help other people have a better experience. In a way, it turns some of the trauma of that time into something more positive.

"I’ve campaigned for about seven years and in that time I’ve watched staffing at my local unit improve substantially. With my MP’s help, we’ve managed to secure a Westminster Hall debate on neonatal care, which produced several new commitments from the Health Secretary.

"I’ve lobbied MPs at Parliament on several occasions, helping to raise the profile of Bliss and neonatal care and I’ve had meetings with my local NHS Trust to discuss staffing and family centred care improvements.

"Campaigning for Bliss is very rewarding. Remember that you are the expert and it is only with the input of people like you and me that we can achieve the level of neonatal care that our babies deserve.''

If you’ve been inspired by our campaigner stories, and want to make a difference in your local area, sign up to be a campaigner.

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