Helpline 0808 801 0322

 

Full list of useful organisations


Pregnancy 

It can be worrying if you have been told you might have your baby early, or they might be sick when they are born. These organisations provide support during and after pregnancy. 

Action on pre-eclampsia Support for those affected by pre-eclampsia

Antenatal results and choices (ARC) Information and support during and after pregnancy

Miscarriage association Information and support for those affected by miscarriage, ectopic pregnancy or molar pregnancy 

Tommy's For information and support during and after pregnancy

Family support

Family life on the neonatal unit and at home can feel challenging when your baby is born premature or sick. These organisations provide a range of support for families.

Carers Trust Information, advice, discussion and support for carers

Carers UK Support for carers and their families

Contact a Family Provides information and support to families with disabled children

Home-Start Support for families with young children

IPSEA (Independent Parent Special Education Advice) Free legally-based advice to families who have children with special educational needs

Gingerbread Information and support for single parents through a network of local groups

NCT Information and support through local parent networks

Netmums Bliss messageboard A platform for parents to connect to parents with similar experiences

Patients Association Information and advice on healthcare services, dealing with problems and handling complaints

Relate Offers advice, relationship counselling, and support face-to-face, by phone and online

Samaritans Provides a confidential counselling service

Tamba Support for families with twins, triplets and more

The Lullaby Trust Information and support for safer sleep for babies

Tiny Life Northern Ireland’s premature and vulnerable baby charity

Working Families Information on employment rights, childcare and flexible working

Financial support

A long stay in hospital or living away from home can cost a lot of money. These organisations can provide financial advice and information for families with a baby in a neonatal unit. 

ACAS Provides free and impartial information and advice to employers and employees on all aspects or workplace relations and employment law

Citizens Advice Bureau Free, independent, confidential and impartial advice on your rights and responsibilities

Department for Work and Pensions Responsible for welfare and pension policy within the UK

Family Fund Offer grants for disabled children

National Debtline Free, confidential and independent advice about debt problems

Tax Credits Provides advice to families on tax credits

Turn2Us Information about accessing benefits and grants

Practical support

It can be hard to know what practical support you need with a baby in neonatal care or when you go home. These organisations provide products and information to help you care for your baby. 

Some of these organisations support the work of Bliss. Find out more

Angelcare Produces a range of sound and movement monitors as well as nappy disposal systems

Child Accident Prevention Trust (CAPT) Information on how to avoid injury and serious accidents involving children

Child Car Seats (RoSPA) Information and advice around suitable car seats for children

Mothercare Produces a range of baby products including premature clothing

Pampers Produces nappies, including for those born premature

Vija Design Produces a range of skin to skin clothing, with a specialist range for parents of babies born premature

Mental health support

Parents tell us how having a baby on the neonatal unit can impact their mental health. You may find help from these organisations

British Association of Counselling and Psychotherapy (BACP) Provides a search to help you find a local counsellor or therapist

Birth Trauma Association Offers support to all women who have had a traumatic birth experience and support to families also affected

Mind Provides advice and support to empower anyone experiencing a mental health problem

Pandas Offer support before and after pregnancy

Young Minds A charity championing the wellbeing and mental health of young people

Conditions and disabilities

Neonatal units provide care for babies with a range of different needs. These organisations provide information and support for specific medical issues. 

Asthma UK Information and support around asthma

Brain and Spine Foundation Information on injury or damage to the brain, spine or nerves

British Lung Foundation Support, advice and a network of support groups

British Heart Foundation Provides information about heart conditions 

Cerebra Foundation Support for children and young people with a brain injury

Cleft Lip and Palate Association Information and support services for those affected by cleft lip and palate

Contact a Family Provides information and support to families with disabled children

Down’s Syndrome Association Information and support to help people with Down’s syndrome, their families and carers.

Family Fund Offer grants for disabled children

National Deaf Children’s Society Information and support for children born deaf and their families

Newlife Help and care for sick and disabled babies, children and their families

RNIB Offers support and advice to blind and partially-sighted people in the UK

Scope Support for disabled people and their families

Steps Provides support for anyone affected by clubfoot, hip dysplasia and other lower limb deficiencies

Whizz Kidz Offers a range of support and advice services for disabled children

Health Guidelines

Some organisations provide general guidelines for parents about caring for your baby. Take a look at these organisations and health programmes which you might find helpful. 

NHS Choices General Offers general health information for a wide range health conditions

NHS Pregnancy Smoking Offers information on smoking and support for stopping smoking

PALS Information on how you can contact your Patient Advice and Liaison Service (PALs) for your hospital

The Breastfeeding Network Provides information and support to breastfeeding mothers

UNICEF UK Baby Friendly Initiative Leaflets Provide information to support breastfeeding mothers

UK Association for Milk Banks (UKAMB) Offers information on your nearest milk bank and also how to become a milk donor

Palliative and bereavement support

If you have been affected by the death of a baby, or if you have been told your baby is likely to die, this can be a very difficult time. There is support available to you as a parent or as a whole family. These organisations provide information and support for people who have or may experience a bereavement.

Child Bereavement UK Information and support for those bereaving a child

Cruse Bereavement Care Offers support, advice and information to children, young people and adults when someone dies

Lullaby Trust Provides bereavement support for families who have suffered the loss of a baby

React Financial support towards equipment for children with life-limiting illnesses from disadvantaged households

Sands Support for those affected by the death of a baby

Tamba Provides support for families with twins, triplets or more

Together for Short Lives Information and support around children’s end of life care

 

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