Helpline 0808 801 0322

 

Full list of useful organisations


Pregnancy 

It can be worrying if you have been told you might have your baby early, or they might be sick when they are born. These organisations provide support during and after pregnancy. 

Action on pre-eclampsia Support for those affected by pre-eclampsia

Antenatal results and choices (ARC) Information and support before, during and after antenatal screening

Ectopic Pregnancy Trust Information and support on ectopic pregnancies

Group B Strep Support Information and support on Group B Strep infection

Miscarriage association Information and support for those affected by miscarriage, ectopic pregnancy or molar pregnancy 

Tamba Support for families with twins, triplets and more

Tommy's For information and support during pregnancy, and following miscarriage, stillbirth or premature birth

Family support

Family life on the neonatal unit and at home can feel challenging when your baby is born premature or sick. These organisations provide a range of support for families.

Carers Trust Information, advice, discussion and support for carers

Carers UK Support for carers and their families

Contact a Family Provides information and support to families with disabled children

Home-Start Help families with young children deal with the challenges they face

IPSEA (Independent Parent Special Education Advice) Free legally-based advice to families who have children with special educational needs

Gingerbread Information and support for single parents

NCT Information and support on pregnancy, birth and parenting

Netmums Bliss online forum A supportive online community for parents, families or carers of babies born premature or sick

Patients Association Information and advice on healthcare services, dealing with problems and handling complaints

Relate Offers advice and support on relationships

Samaritans Provides a confidential listening service

Tamba Support for families with twins, triplets and more

The Lullaby Trust Information and support on safer sleep for babies

Tiny Life Northern Ireland’s premature and vulnerable baby charity that provides a range of support services

Working Families Information on employment rights, childcare and flexible working

Financial support

A long stay in hospital or living away from home can cost a lot of money. These organisations can provide financial advice and information for families with a baby in a neonatal unit. 

ACAS Provides free and impartial information and advice to employers and employees on all aspects or workplace relations and employment law, including specific guidance for parents with premature or sick babies

Citizens Advice Bureau Free, independent, confidential and impartial advice on issues including benefits, employment and debt

GOV.UK Information on government services including registering a birth, tax benefits, employment and tax credits

Family Fund Offers grants for families raising a disabled or seriously ill child

National Debtline Free, confidential and independent advice about debt problems

Turn2Us Helps people in financial hardship gain access to benefits, grants and support services

Practical support

It can be hard to know what practical support you need with a baby in neonatal care or when you go home. These organisations provide products and information to help you care for your baby. 

Some of these organisations support the work of Bliss. Find out more

Angelcare Produces a range of sound and movement monitors as well as nappy disposal systems

Child Accident Prevention Trust (CAPT) Information on how to avoid injury and serious accidents involving children

Child Car Seats (RoSPA) Information and advice around suitable car seats for children

Mothercare Produces a range of baby products including premature clothing

Pampers Produces nappies, including for those born premature

Vija Design Produces a range of skin to skin clothing, with a specialist range for parents of babies born premature

Mental health support

Parents tell us how having a baby on the neonatal unit can impact their mental health. You may find help from these organisations

Best Beginnings Out of the Blue is a series of films, created by Best Beginnings, to help raise awareness of maternal mental health

Birth Trauma Association Offers support to all women who have had a traumatic birth experience and support to families also affected

British Association of Counselling and Psychotherapy (BACP) Provides a search to help you find a local counsellor or therapist

Mind Provides advice and support to empower anyone experiencing a mental health problem

Pandas Gives support to people coping with pre and postnatal mental illnesses

Samaritans Provides a confidential listening service

Young Minds A charity championing the wellbeing and mental health of young people

Conditions and disabilities

Neonatal units provide care for babies with a range of different needs. These organisations provide information and support for specific medical issues. 

Asthma UK Information and support around asthma

Brain and Spine Foundation Information on injury or damage to the brain, spine or nerves

British Lung Foundation Support and information about lung conditions

British Heart Foundation Provides information about heart conditions 

CDH UK Provides information and support on congenital diaphragmatic hernia

Cerebra Foundation Support for children and young people with brain conditions

Cleft Lip and Palate Association Information and support services for those affected by cleft lip and palate

Contact Provides information and support to families with disabled children

Down’s Syndrome Association Information and support to help people with Down’s syndrome, their families and carers.

Family Fund Offers grants for families raising a disabled or seriously ill child

Group B Strep Support Information and support on Group B Strep infection

National Autistic Society Provides information and support for autistic people (including those with Aspeger syndrome) and their family

National Deaf Children’s Society Information and support for children born deaf and their families

Newlife Help and care for families of sick and disabled children, including specialist equipment services

RNIB Offers support and advice to anyone affected by sight loss

Scope Support for disabled people and their families

Steps Provides support for anyone affected by clubfoot, hip dysplasia and other childhood lower limb conditions

Whizz Kidz Offers a range of support and advice services for disabled children

WellChild Helps seriously ill children and young people out of hospital and home to their families

Health Guidelines

Some organisations provide general guidelines for parents about caring for your baby. Take a look at these organisations and health programmes which you might find helpful. 

NHS Choices General Offers general health information for a wide range health conditions

NHS Pregnancy and Smoking Offers information on smoking in pregnancy and support for stopping smoking

PALS Information on how you can contact your Patient Advice and Liaison Service (PALs) for your hospital

The Breastfeeding Network Provides information and support to breastfeeding mothers

UNICEF UK Baby Friendly Initiative Leaflets Provide information to support breastfeeding mothers

UK Association for Milk Banks (UKAMB) Offers information on your nearest milk bank and also how to become a milk donor

Palliative and bereavement support

If you have been affected by the death of a baby, or if you have been told your baby is likely to die, this can be a very difficult time. There is support available to you as a parent or as a whole family. These organisations provide information and support for people who have or may experience a bereavement.

Child Bereavement UK Supports families when a baby or child of any age dies or is dying, or when a child is facing bereavement

Cruse Bereavement Care Offers support, advice and information to children, young people and adults when someone dies

Lullaby Trust Offers bereavement support for anyone who has been affected by the sudden death of a baby or young child

React Financial support towards equipment for children with life-limiting illnesses from financially disadvantaged households

Sands Support for those affected by the death of a baby before or shortly after birth

Tamba Tamba Bereavement Support Group (BSG) exists to support all parents and carers of multiples who have experienced the death of a baby

Together for Short Lives Information and support for families with babies or children who are expected to have short lives

 

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