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Conditions, disabilities and health guidelines


Baby with eye mask

Conditions and disabilities

Neonatal units provide care for babies with a range of different needs. These organisations provide information and support for specific health conditions and disabilities. 

Asthma UK Information and support around asthma

Brain and Spine Foundation Information on injury or damage to the brain, spine or nerves

British Lung Foundation Support, advice and a network of support groups

British Heart Foundation Provides information about heart conditions 

Cerebra Foundation Support for children and young people with a brain injury

Cleft Lip and Palate Association Information and support services for those affected by cleft lip and palate

Contact a Family Provides information and support to families with disabled children

Down’s Syndrome Association Information and support to help people with Down’s syndrome, their families and carers

Family Fund Offer grants for disabled children

National Deaf Children’s Society Information and support for children born deaf and their families

Newlife Help and care for sick and disabled babies, children and their families

RNIB Offers support and advice to blind and partially-sighted people in the UK

Scope Support for disabled people and their families

Steps Provides support for anyone affected by clubfoot, hip dysplasia and other lower limb deficiencies

Whizz Kidz Offers a range of support and advice services for disabled children

Health Guidelines

Some organisations provide general guidelines for parents about caring for your baby. Take a look at these organisations and health programmes which you might find helpful. 

NHS Choices General Offers general health information for a wide range health conditions

NHS Pregnancy Smoking Offers information on smoking and support for stopping smoking

PALS Information on how you can contact your Patient Advice and Liaison Service (PALs) for your hospital

The Breastfeeding Network Provides information and support to breastfeeding mothers

UNICEF UK Baby Friendly Initiative Leaflets Provide information to support breastfeeding mothers

UK Association for Milk Banks (UKAMB) Offers information on your nearest milk bank and also how to become a milk donor

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